cavan-tommy-hoey-trust-blog typepad.com

Cavans Blog Site

This is the blog site of Cavan Tommy Hoey he is a little boy who has two life threaten diseases XLP,X-Linked Lymphoproliferative Syndrome,and EBVHLH Epstein-Barr Virus and Hemophagocytic Lymphohistiocytosis and yet he has time to smile and to raise awareness of rare diseases

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LINKS TO WEBSITE

Rare Disease Day Belfast 2012

Very Rare But Very Strong Together we can beat rare diseases with support. Little Children All Over The World Need Our Help. When I am raising funds for the Cavan Tommy Hoey Trust Iam questioned is this money for the children at home our answer is Rare Diseases Has No Borders, rare disease Effects Children All Over The World It Does Not Matter Where You Live. Thursday, March 1, 2012. Thursday, March 01, 2012. Thursday, January 19, 2012.

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Cavans Blog Site

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This is the blog site of Cavan Tommy Hoey he is a little boy who has two life threaten diseases XLP,X-Linked Lymphoproliferative Syndrome,and EBVHLH Epstein-Barr Virus and Hemophagocytic Lymphohistiocytosis and yet he has time to smile and to raise awareness of rare diseases

PARSED CONTENT

The site states the following, "Hemophagocytic Syndromes Sourced From Histiocytosis Association of America." I noticed that the web site said " The Cavan Tommy Hoey Trust Rare Disease DayReceptionNorthern Ireland Assembly 2010 Cavan Pictured on the day." They also stated " What is the cause of this severe immune dysregulation? In cases of secondary HLH, a condition of temporary immunodeficiency seems to contribute to the development of the disease. Because symptoms can vary widely, it is sometimes difficult for the physician to make a diagnosis of HLH early in the course of the disease ." The meta header had Rare Disease as the first keyword. This keyword was followed by which isn't as urgent as Rare Disease.

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